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Last summer may be remembered for the ALS Ice Bucket Challenge awareness campaign that went viral on Facebook. 10 years ago Patrick O’Brien, a friend I loosely know from the internet, was diagnosed with ALS and was given two to five years to live. Patrick is a clever, funny and irreverent man whose CV ranged from internet meme-making superstar to NYC DJ to film maker. Patrick’s films in particular always held my attention.
After his diagnosis, Patrick turned the camera on himself and chose to document his his life with ALS and what it’s like to live when you find out you are going to die. The making of this film has now held my attention since 2005, Patrick needed money to finish it and over the years I have gladly donated to this cause to see the film finished. In 2014 as part of a final push Patrick and his team started a crowdfunding page on Rockethub. The project was fully funded and Patrick could focus on finishing his film.
Well, the film is now finished and will be launched at the 2015 Tribeca Film Festival in New York City. The film is part of the Viewpoints section. The Viewpoints section centers on the theme of identity.
We have been lucky enough to see and almost complete edit of the film since we are helping Patrick with some web collateral to support his film. The film is incredibly touching, funny and crushingly sad. Patrick’s crazy ideas are littered through the film, for example in 2007 he decided to have a funeral for his arms once he had finally lost control of those limbs. We really hope you get a chance to see the film someday.
In the meantime you can find out more on Patrick’s Facebook page.